Metastatic Triple Negative Breast Cancer Blog I Louise DeCelis

Louise DeCelis and Elysia McConkey at balmoral beach

Sisters United

 Dominic Byrne    10 Comments

It was great to see Elysia arrive safely this morning. I stayed in bed with Lou until Elysia’s taxi dropped her off at the clinic. It would have been a beautiful commute with fresh snow in the villages and farmland between Frankfurt airport and Bad Salzhausen. I hold Lou’s and all night. (she

Some flowers evie picked for her "mumma"

Noah And Evie Came In Today To Tell Their “Mumma” They Love Her

 Dominic Byrne    31 Comments

I brought Noah and Evie in to cuddle and kiss their mum today. I’d like to say it wasn’t a facilitated goodbye but while we hope for a miracle, I have to prepare for the worst. I was undecided on whether they should see her. Lou fell into a deep

louise-decelis-with-deer horns-usa-holiday

When it all comes clear, when the wind is settled I’ll be here, you know…..

 Dominic Byrne    5 Comments

Just some pics of Lou. Not for any particular reason. Lot’s of memories.  Always happy. Always full of life. I’m on bedside care duties tonight. Hopefully, her mum and dad get some rest. xx    

Louise and Dom on Evie's fourth birthday party

I Cried Today

 Dominic Byrne    20 Comments

Someone asked me a few months ago, “when was the last time you cried?” I couldn’t recall. I’ve thought about it a lot and why it’s been so long. Not days, not months, perhaps decades. I’m not proud of it, I think it’s a little strange. The last time I

Hospital Care Update I Special Hospital Dr. Herzog / Bad Salzhausen

 Dominic Byrne    2 Comments

Lou has been in 24-hour medical care with Professor Herzog since the 26th of December. We needed somewhere between treatments that can give Lou the medical support we can’t. The private clinic is in Bad Salzhausen, 55km’s from where our apartment is in Bad Homburg. Lou is in a double room so Lynda, Les

I’m Keen For The Results Of Lou’s Liver Function Test Today

 Dominic Byrne    No Comments

Lou’s brain has been scrambled since Friday. This has only previously happened when her liver has been overloaded processing the chemotherapy with TACE. It’s been a little over three weeks since her last liver treatment so there wouldn’t be any chemo in her liver now. A simple blood test measures how well

Struggle Street

 Dominic Byrne    5 Comments

Lou had a good few days to finish off 2018, which we’re very grateful for. She’s struggling right now though. She has no energy, she’s extremely weak and has non-stop nausea. Mentally she’s in the basement. She’s very emotional. It’s difficult to watch when there isn’t anything you can do make

Personalised Cancer Treatment Options For Louise

 Dominic Byrne    No Comments

We’ve commissioned a number of blood and tumour molecular screening/profiling tests over the last six months, with the aim to source potential treatment options for Louise. Tests include: RGCC mOST Foundation One; and OncoDEEP (summaries for the above reports in red + access to the full reports in Lou’s treatment history)

A Decision Point For The Next Liver Treatment

 Dominic Byrne    2 Comments

Louise was scheduled for her third round of TACE today but her bloods have continued to drop. Her platelets are 10 000 as we speak. A normal platelet count ranges from 150,000 to 450,000 (platelets per microliter of blood). So her platelets are 140 000 short of where we would

Happy New Year To Lou’s Precious Village

 Dominic Byrne    No Comments

Happy New Year to Lou’s essential supporters. 2018 was a challenge for us. 2019 will not be any easier, we know that.  We’re a long way from the summit, the air is thin and our packs are heavy. We’ll keep trudging with our eye on the summit and your support

How Is Lou Doing And How Is Her Liver?

 Dominic Byrne    3 Comments

How is Lou Doing? It’s a question I get asked many times a day. Unfortunately for months now I haven’t been able to give a positive response. In most instances I find myself adding to the answer; “she is doing well considering…” While her physical condition obviously isn’t good, I

That’s A Hat-rick, Three Good Days Of Improved General Health

 Dominic Byrne    No Comments

Louise has had the best three days in a long long time. She’s battling some lymphedema today which tarnished a reasonably clear side effect run. And towards the end of the day, her mind was carrying the weight of our next treatment move but she looked tip-top and has made some great physical gains since

A Good Day 😊

 Dominic Byrne    2 Comments

Louise had a really good day today. 🤗 It’s the best day I can recall since the 11th of October.  Let me just ask Google how many days that is…………………………………. 77. Boy. That’s waaaaaaaaay too long, 77 days is a very long time to feel like rubbish. Lou had 1.2 litres drained

I Just Thought I’d Post This Amazing Image Of The Burghausen Castle

 Dominic Byrne    No Comments

The Burghausen Castle is about a kilometre down the river from Lou’s clinic. Here a couple more: (click to enlarge) Yeah, so Australia didn’t even have a building on it’s land until about 800 years after this castle was founded, in 1025…… And the locals will tell you its the

BELIEF Combined With PERSPECTIVE Is The Ingredients Needed I Merry Christmas

 Dominic Byrne    5 Comments

Merry Christmas everyone, from the De-Byrne’s, for this Christmas and the next. We love You! 👨‍👩‍👧‍👦 🤗 Cherish your family today and every day. Be aware of and appreciate the great things you have. 💗

The Generosity Follows Us Around The Globe

 Dominic Byrne    No Comments

🙏🙌🏽😗💗👊🏾🤗🙏🙌🏽😗💗👊🏾🙏  Noah And Evie making Christmas cookies with Kirsten and her kids. Yum Yum!

Louise Got Very Sick Very Quickly After The Last TACE

 Dominic Byrne    4 Comments

Well, that didn’t go well. Louise went downhill faster and harder than me on my motorcycle. On Friday after her chemotherapy liver treatment, I made a prediction she would start spiralling on Monday, with the hope it wasn’t too severe this time. Well, nausea and vomiting started prematurely on Friday

Where Are We At Right Now? Hmm..

 Dominic Byrne    1 Comment

Some quotes from Professor T Vogl I jotted down Verbatim: “the amount of tumour tissue in the pleura is better, the reduction of fluid is also becoming now less.” “With the liver, we always have a problem, we treat one area and of course, we cannot treat the whole liver,  other areas are still in activity. 

Liver Treatment And progress Scans Today

 Dominic Byrne    1 Comment

 Greyhound Starting Gates We’re in dogbox number nine Scan day today! Breathing through the pain…

Louise getting a blood transfusion in the Frankfurt University Hospital

26 Days In Germany

 Dominic Byrne    3 Comments

We’re closing in on a month in Germany, I’m honestly not sure if the time has gone fast or slow. Being in a foreign country, a place I’ve never previously visited, a place with much to do and see but it’s somewhat of a blur. On occasions, you get a minute

Thank You Thank You Thank You

 Dominic Byrne    No Comments

If YOU donated $1 or $1000, if YOU purchased a book for $50 or successfully bid $10, 000 on the Yacht, the gratitude from Lou and her family is as immense. As mentioned in the auction booklet, EVERYONE’S contribution is a true testament that the whole is greater than the


 Dominic Byrne    No Comments

Good morning Australia 🇦🇺. Lou had another 1.5 litres of fluid removed from her right lung yesterday. That’s twice in seven days. 😩 The good news is that she had her best day today since we have been in Germany, and we’ve been here for three weeks already……..I know right.

A Kick In The Face When You’re Down

 Dominic Byrne    5 Comments

So Lou’s right lung is full of fluid again. If you look up side effects for “pleural effusion” you will get: Shortness of breath A dry cough Pain A feeling of chest heaviness or tightness Inability to lie flat Inability to exercise (or move in our instance) Generally feeling unwell

Lou Is Really Struggling

 Dominic Byrne    4 Comments

So we’ve finally moved into an apartment, we’re in a beautiful town called, Bad Homburg. It’s a close distance to the two clinics we visit daily. The kids now have play space with neighbouring parks. Hopefully, we get a little time to explore and familiarise ourselves with the area. It

Our First Unplanned Trip To A German Hospital

 Dominic Byrne    5 Comments

That’s not a bag of urine, beer or ice tea. It’s a litre of fluid drained from Lou’s right lung. The reason she hasn’t been eating and has had 24/7 nausea. The tube was still attached in the pic, and the bag drained another .5 of a litre making it a

The Online Auction Is a Go!

 Dominic Byrne    2 Comments

9 more sleeps until Lou’s party. We’ve sold 410 tickets to the event, there are 139 auction items online with many more to be added. Products are open for instant buy and bidding. (yep, click on the hammer) Lou’s village has spoken. No wonder this is Noah’s favourite song: Crank up

Guten Morgan

 Dominic Byrne    No Comments

It’s only 8pm in Frankfurt but the kids and Lou have been out for an hour. It’s blissfully quiet. Just that very faint hotel murmur, humming somewhere unidentifiable in the background. I’d be lying if I said I didn’t want to be waking in my own home right now, getting Noah dressed

Current Treatment Regime – Frankfurt

 Dominic Byrne    No Comments

The objective is to achieve four individual regional chemo liver sessions (half the liver per session) with Professor Vogle between November and January.  In between these sessions, receive as much complementary therapy as possible. Univ. Prof. Dr. med. Thomas J. Vogl Transarterial chemoembolization/chemoperfusion; Abdomen Rotation Vom. Puncture of the femoral.

A small win with a ling way to go.

A Win Is A Win, Even If It’s Small

 Dominic Byrne    No Comments

Lou is still very unwell but we had our first small win yesterday. Her big tumour on her liver that has been growing uncontrollably has shrunk by 5% in surface area and 7% in volume. This occurred over a seven day period. It is a small win and hopefully validation we

We're nit having much success but we are still shooting

Fick Krebs!

 Dominic Byrne    1 Comment

Lou’s second round of liver treatment scheduled for today was postponed until the first week of December. She’s been extremely unwell since we arrived, with little to zero energy. Her white and red blood cell numbers are down, they’re a tad high for transfusions but low enough to keep her on

Deutschland Update

 Dominic Byrne    No Comments

It was a very long journey door-to-door. Lou got here as good as we’d hoped and the kids were absolute champions. I couldn’t have asked for more. We’ve been here for three days. She’s had one targeted treatment session on the liver with another scheduled for Thursday. She starts some

RCT (Regional Chemotherapy), The Objective Is To Buy More Time

 Dominic Byrne    No Comments

I’m attempting to talk about RCT, I think you’ll find it hard to comprehend while Evie is busy “on the phone.” 😂 I do pretty well at staying on track. (you’ll see her walking around in the background “talking to her cousin Billy” – classic) Hey Evie, the phone is

When We Beat This Horrendous Disease You Would Have All Contributed

 Dominic Byrne    No Comments

 🙏🙏🙏👊🏾👊🏾👊🏾🤗🤗🤗👨‍⚕️👨‍⚕️👨‍⚕️🤞🤞🤞 💓💓💓 Thank You!!

Always and forever I’ll be your Mumma XoX

 Louise DeCelis    1 Comment

Heart melting over this drawing Noah gave me today. It’s mummy’s cancer battle. Noah tells me the good cells outnumber the bad cells 10 to one and they win!!! He took me through this very detailed battle plan and it sounds like a winner to me!! The three large colored


 Louise DeCelis    24 Comments

Dear family and friends, the time has come for us to ask for your help. The community that you have created around us is phenomenal. It’s nurturing, energising, committed, sympathetic, and full of an immeasurable amount of love. It’s more than we could have ever hoped for. Having this village

Our Options In Australia Are Running Pretty Thin

 Dominic Byrne    4 Comments

It’s the first week of November, this is the week that we were meant to be reviewing the success of the Immunotherapy (IO) trial. The original plan was to schedule the scans and decide if we were to continue with the trial or not. Well as you know the cancer

Two Hours On My Shrink

 Dominic Byrne    No Comments

I just spent two hours at the track and I’ve reset my brain. I know some people, actually a lot of people, probably wonder why I participate in action sports that come with a high risk of injury. Especially now that I’m far from the reckless age of a teenager,

Louise DeCelis Back in Hospital For Chemo Side Effects

My Week In Numbers

 Louise DeCelis    10 Comments

All the preparation in the world cannot beat the demon that is chemo. It might start ok, and you think “hey maybe this time I’m going to get through this relatively unharmed” and then SMACK, SMACK and once you are down SMAAAAACK!!!!! There is no such thing as chemo and

Fundraiser For Lou!

 Louise DeCelis    4 Comments

When we started this blog on the 11th August we never expected we’d be posting about raising funds for Lou. We also never expected that chemotherapy, surgery, radiation, more chemo, more radiation and immunotherapy wouldn’t work either. With the ongoing expense of fighting cancer now outweighing our diminishing income. We’re overcoming


 Dominic Byrne    5 Comments

Remember those wild Thursday nights in the late 90’s, early 00’s at the Greenwood Hotel? I sure do. We’re having another one, all for Lou. Put the date in your diary now. Let’s make it a sellout. While all the details are to follow, if you or anyone you know

Treatment Position

 Dominic Byrne    1 Comment

Lou is officially off the trial as her primary liver tumour has doubled in size and she has more lesions. Her three Aussie Onco’s advise we start chemo on Monday (gemcitabine and carboplatin). The positive’s are: We don’t have a better option right now It is a combination that has

The Immunotherapy Trial Didn’t Work

 Dominic Byrne    4 Comments

The path we were on has lead to nowhere. We are in no better position than the original diagnoses in June 2017 or learning of the disease spreading in August. In fact, our situation is much more inauspicious. A little draconian I know, but that’s how it is.   Due to an ongoing

Give Blood, Make The Effort And Save Lives

 Louise DeCelis    No Comments

Have you ever needed a blood transfusion? Do you donate blood regularly? 💉 🌡 If you’re answer to question 2 is no, and you have no medical reason, then just consider for a moment that there was no blood to give me today. Or no blood for your loved ones

To Be Honest, It’s Been a Shit Month

 Dominic Byrne    1 Comment

I was just looking at my calendar and thinking, we’ve had a bad run. Yep, Fuck You Cancer, you’re making us work for it. Lou’s only had a few good days since 10 September. It’s mainly the Paarp pills that are causing severe fatigue, nausea, anxiety and pain. It’s a real

Dominic, Geoffrey and Tristan Byrne, Borneo Coast to Coast. Sandakan Death March.

Sandakan Death March

 Dominic Byrne    4 Comments

11/October/2018 In two weeks, if Lou is in satisfactory health with her current treatment plan, I’m going on a journey. My dad, brother and I are going to be rafting, trekking and bike riding The Borneo jungle, Coast to Coast. When cancer becomes your life, it helps to relate other peoples

The Little Ratbags are Happy, I’m Happy

 Dominic Byrne    2 Comments

So this is me on Sunday morning (no makeup), it’s early, the sun hasn’t even graced us with its presence. I’m 41 and still get excited about the day ahead when I know it’s going to be fun. Evie and Noah are asleep, I do want them to wake but

How To Beat Metastatic Triple Negative Breast Cancer

 Dominic Byrne    5 Comments

So you want to be cancer free, what are you doing about it? Minute by minute, play by play? You need to imagine your success, visualize what you want, feel it. You must be focused and know exactly what you need to get from here to there. You need to

Louise Decelis's Blood used for Immunotherapy Trial

Treatment Update September 2018

 Dominic Byrne    No Comments

Lou’s just shy of seven weeks since going from a stage one cancer patient to a stage four, In a single day. We’ve talked to dozens of subject matter experts during this time and we’ve learnt a stack of information while being simultaneously guided with treatment. Lou had a face to

My Tidal Thoughts

 Dominic Byrne    9 Comments

Your brain covers a lot of distance in many different directions when mortality is on your doorstep. I truly believe Lou will be around much longer than the ominous sentence most pundits prescribe. But when time is an unknown, it keeps your brain humming. If you knew you had months,