How To Beat Metastatic Triple Negative Breast Cancer
So you want to be cancer free, what are you doing about it? Minute by minute, play by play? You need to imagine your success, visualize what you want, feel it. You must be focused and know exactly what you need to get from here to there. You need to
Treatment Update September 2018
Lou’s just shy of seven weeks since going from a stage one cancer patient to a stage four, In a single day. We’ve talked to dozens of subject matter experts during this time and we’ve learnt a stack of information while being simultaneously guided with treatment. Lou had a face to
My Tidal Thoughts
Your brain covers a lot of distance in many different directions when mortality is on your doorstep. I truly believe Lou will be around much longer than the ominous sentence most pundits prescribe. But when time is an unknown, it keeps your brain humming. If you knew you had months,
A Few Days On The Snow – Just What The Doctor Ordered
My brother Happy and I had the best few days on the snow, in the sun, with Faith and Noah. What an escape. Alpine air in the lungs, fast turns and family time. #Winning
R U OK?
Three days ago I had a full blown panic attack in the middle of a crowded flight, that had only just taken off, trolleys blocking both my ways out. I knew it was coming. It started with shortness of breath, a warm feeling crawling up all my limbs, nausea, shoes
Evie Harper Byrne, So Much Character And A lot of Clanger
A little bit of humour leading into the weekend. Lou had a week to herself in Cleanland (Queensland), relaxing and preparing for the next phase of treatment. She’s feeling tip-top so, why not a little laugh. Evie Pops loves a mashup. She has an amazing, un-deliberate ability to mash together not
Today Australia Has A New PM, Who Gives a $*#! When Noah is Kicking Arse
I didn’t know it was possible to be so proud of a five-year-olds achievement. Today Noah was presented, in front of his whole school, the Kindergarten Blue Award. Days like this make you feel like a million dollars. Noah, I honestly don’t care what profession you choose, what sport you play, what
A Little Bit About The MoST Trial
So Louise is enroled in the Immunotherapy Trial, which she starts on September 5. This is an attempt to assist her immune system to find and destroy cancer cells. She is also simultaneously participating in the MoST trial, which is quite different and essentially starts out as a research study. MoST
A Compliment For Louise
So yesterday at our Immunotherapy kick-off meeting, Professor Kefford gave Lou a quality compliment. Not bad coming from someone who has been working with cancer and treating cancer patients with chemotherapy, radiation and Immunotherapy, from before Lou was born. “I’ve been doing this job for forty years and haven’t seen anyone that looks as
I don’t know why this is?
Even though my medical experience is shallow, from my observation, there is a massive divide between non-traditional and traditional medicine. Surely there could be major benefits, for patients, if there were collaboration and co-creation of treatments. I don’t know why this is? Other countries seem to be so much more
Never Ever Give Up, Never
I thought I’d share a personal email I sent Lou at the beginning of this cancer journey. Umm yep, I send my wife emails that are non-work/admin related. Somehow my keyboard knows what to say when my mouth doesn’t. If it wasn’t for modern comm’s technology (SMS, email, social etc)
Immunotherapy Explained, As Best I Can Anways
Immunotherapy helps your immune system find and destroy cancer cells. I’ve read in detail and it gets pretty technical, my head was spinning. The best summary is that cancer cells have molecules on their surface that can be detected by the immune system (tumour antigens). The immunotherapy directs the immune
Woo Hoo, We Got Into An Immunotherapy Trial
Yay, Lou was accepted into an Immunotherapy trial today. A tiny win in our cancer war. The Good The study might work. Fingers and toes crossed. Pray to your gods. If the study doesn’t work for us, the knowledge will help people with advanced cancer in the future. That’s a
Week Two: Appointments And Firming Up Plan Of Attack
We kicked off with a biopsy on Monday morning (13 August). Three samples were taken from Lou’s ninth rib. One was a standard sample, one for the Immunotherapy Trial and one for the MoST trial. On Tuesday Lou started Radiotherapy. This localised radiation was continued on Tuesday, Wednesday, Thursday and
Yesterday Was A Bad Day On The Rollercoaster
Yesterday was a bad day on the rollercoaster. Tough, overwhelming, painful and exhausting. I want to tell you all about it but before I do I want to thank every single one of the 502+ people who have shared our post looking for other women like me. It’s unbelievable how
How to tell a five year old his mum has cancer, and it’s serious
Without anyone telling Noah that mummy was in a precarious situation, he knew something was up. Five-year-olds are way more clever than often credited. They might be doing simple sight-words and basic maths, but they know a hell of a lot. In a meditation class at school last Tuesday, Noah
Recommended Diet
Lou’s Naturapath has recommended she go on the Keto Diet + Red Meat. See attachments: Louise’s Diet – Ketogenic Diet Nutritional Advice Oligo Scan We are also expecting an RGCC test to be conducted this week which will produce an individual profile of both chemotherapeutic drugs and natural substances (including diet) that
I Want to Speak With ‘Triple Negative Metastatic Breast Cancer Patients’ That Have Responded To Treatment!
I am on a mission to find anyone that: Has been diagnosed with triple negative breast cancer They were treated with chemotherapy The chemotherapy didn’t work (cancer turned up somewhere else i.e metastatic) They are now responding positively to another/different treatment option (Traditional and/or Non-Traditional medicine) I’m super keen to talk
Week One: Appointments For Plan Of Attack
Professor John Boyages I 7 August Based on Louise’s treatment summary you approved, there wasn’t any variation to your recommendation of treatment The only thing John was keen to do was a PET scan The PET scan didn’t seem to be a priority for Dr Morgia, Dr Forster or Dr
The Immunotherapy Trial That Louise Is Likely To Start is The JAVELIN Medley
JAVELIN Medley: ANZCTR Website & Australian Cancer Trials Website Louise’s likely schedule after her five rounds of radiotherapy is Immunotherapy with a Parp Inhibitor: Immunotherapy – Immunotherapy is a type of cancer treatment which assists the body’s immune system to fight cancer. Immunotherapy can boost the immune system to work better against cancer or
So What Does The Last Seven Days Look Like?
It’s been seven days since Lou’s oncologist dropped the mother of all bombs on our lives. Yeah, we’d been living with cancer for over a year. Yeah, Lou had been brutalised with 14 months of barbaric treatment. Yeah, it disrupted our lives as we ran the cancer gauntlet while trying
Louise DeCelis’s History of Diagnosis And Treatments For Triple Negative Breast Cancer
Diagnosis date: June 2017 – Stage IIA (cT2N0) triple negative invasive ductal carcinoma of the left breast. 22mm. Ki67 60% Chemo: Started 12 July 2017 – Neo-adjuvant chemotherapy Three rounds of FEC and three rounds of D (12Jul17 – 24Oct17) From my memory, the tumour shrunk slightly in the first
Oncologist Recommendation For Immediate Treatment
Biopsy To confirm receptor status and provide tissue for further testing re clinical trial eligibility Consider radiotherapy to rib lesion for pain relief (best to do early rather than need to interrupt systemic treatment) Dr Marita Morgia’s team to arrange appointment Clinical trial JAVELIN PARP Medley trial (avelumab plus talazoparib)–
Why TNBC Is Such A Biatch!
When you first find out that you have breast cancer, your doctor searches for the presence or absence of three receptors, proteins that live inside or on the surface of a cell and bind to something in the body to cause the cell to react. You may have heard of
What Is Cancer? Do You Actually Know The Answer?
If you or someone close to you has been diagnosed with cancer, you know how overwhelming it can feel. Maybe you’re also getting a lot of confusing information and advice. The more you know, the more confident you’ll feel making decisions. That’s the way I see it. If you asked
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